Mdm Aidah, 48 years old, is the main caregiver for her 16 year-old son, who is diagnosed with cerebral palsy spastic quadriplegia and epilepsy. Caring for a child with disability is challenging enough, but imagine having to do it alone, without a partner to share the emotional and physical load with, without any form of extended support. On top of that, Mdm Aidah still has to take care of her elderly mum and her second son single-handedly.
Mdm Aidah told us that her eldest son is highly dependent on her to carry out activities of daily living as he is bed-ridden and wheel chair bound. As such, she is required to be on 24/7 standby to take care of his needs and is unable to take on a part time job to help supplement the family’s income. Mdm Aidah also struggles when she has to bring her eldest son to the hospital or to the special needs school, as her body is unable to support the weight of lifting her growing 16 year old son off the bed. The act of transferring him from the bed to the wheelchair has eventually taken a negative toll on her physical health as she was recently diagnosed with arthritis.
Health issues aside, the mounting financial expenses appears to be a larger worry for Mdm Aidah and her family. With outstanding arrears such as HDB loans and conservancy charges to settle, Mdm Aidah is financially strained. She is also concerned that she is unable to cope with her son’s growing expenses, which easily comes up to about $400-$500 a month, as he is recommended by the doctor to follow a specially recommended diet that includes Cerelac, baby food, yoghurt and yakult.
Despite the trying times, Mdm Aidah has never once lamented or blamed anyone for the situation that she is in. Like any caregiver, there are times when she feels worn out, over-stretched and feels like she has no personal time for herself. But like every mother who wants the best for her child, she continues to try her utmost to provide tremendous support for her children with the little she has.
Thus ROHI hopes to raise $300 for 4 months to help Mdm Aidah defer her eldest son’s expenses partially for the time being.
Your donations will go a long way in supporting Mdm Aidah and her family!