Mdm Aidah, 48 years old, is the main caregiver for her 16 year-old son, who is diagnosed with spastic quadriplegia (cerebral palsy) and epilepsy. Caring for a child with disability is challenging enough, but imagine having to do it alone, without a partner to share the emotional and physical load with, without any form of extended support. On top of that, Mdm Aidah still has to take care of her elderly mum and her second son single-handedly.
Mdm Aidah told us that her eldest son is highly dependent on her to carry out activities of daily living as he is bed-ridden and wheel chair bound. As such, she is required to be on 24/7 standby to take care of his needs and is unable to take on a part time job to help supplement the family’s income. Mdm Aidah also struggles when she has to bring her eldest son to the hospital or to the special needs school, as her body is unable to support the weight of lifting her growing 16 year old son off the bed. The act of transferring him from the bed to the wheelchair has eventually taken a negative toll on her physical health as she was recently diagnosed with arthritis.
Health issues aside, the mounting financial expenses appears to be a larger worry for Mdm Aidah and her family. With outstanding arrears such as HDB loans and conservancy charges to settle, Mdm Aidah is financially strained. She is also concerned that she is unable to cope with her son’s growing expenses, which easily comes up to about $400-$500 a month, as he is recommended by the doctor to follow a specially recommended diet that includes Cerelac, baby food, yoghurt and yakult.
Despite the trying times, Mdm Aidah has never once lamented or blamed anyone for the situation that she is in. Like any caregiver, there are times when she feels worn out, over-stretched and feels like she has no personal time for herself. But like every mother who wants the best for her child, she continues to try her utmost to provide tremendous support for her children with the little she has.
Thus ROHI hopes to raise $300 for 4 months to help Mdm Aidah defray her eldest son’s expenses partially for the time being.
Your donations will go a long way in supporting Mdm Aidah and her family!
06 Jun 2018
The family is busy preparing for Raya
The case managers at ROHI visited Mdm Aidah and her son, Zhafran, recently to find out how the family is coping! Since it is the june holidays now, Zhafran does not have to attend school. Mdm Aidah told us that she is busy preparing for raya and there were many a times where she had to go out and run some errands, but there was nobody at home to tend to Zhafran's needs. She expressed her concerns that this made it difficult for her to run errands. Nonetheless, the family is excited preparing for Raya!
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03 Apr 2018
ROHI caught up with Mdm Aidah
ROHI recently caught up with Mdm Aidah for her second cheque disbursement. We heard from her that she has recently suffered a fall due to the uneven pavement caused by the ongoing renovation works in her vicinity. As a result, she injured her chest and is having difficulty especially when lifting Zhafran off the bed She also told us that she is worried about making ends meet, as her comcare assistance is ending and it will likely take some time for it to be renewed. Without assistance from comcare, Aidah will struggle even more with her caregiving role.
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29 Jan 2018
Mdm Aidah's first cheque disbursement
We visited Mdm Aidah for her first cheque disbursement and she was happy to receive the kind support from donors! Things haven't been going smoothly for Mdm Aidah, as she recently lost her brother who used to stay together with her. The death of her brother has incurred a significant amount of medical debt and Aidah is concerned that she wouldn't have the means to pay them. The constant lifting of her child to and from bed has also caused her to tear her ligament again. Nonetheless, she remains positive about life and believes the best way out is to take each day at a time.